Flapjack Jam Update 10.1.12

T-shirts - PRE-SALES EVENT ENDING SOON!

Did you look at the calendar this morning? It's October 1 already! Time is flying by! Only 12 more days to the Flapjack Jam! We are so, so excited over here at the HQ. We have been busy as bees - working non-stop to bring you the BEST EVENT EVER! ( I love an exclamation point today!!)

Where to start...

Tickets, yeah, you're going to need some of those. And T-shirts. You will need those too. You need to get them ASAP - don't delay! Visit the website www.flapjackjam.com and pick your poison - you can get the $50 FRIEND OF DYLAN sponsorship, which gets you two adult tickets and your name on the website, or you can order straight tickets and t-shirts there too.

Remember, very important here, we will NOT be ordering a lot of extra kids sizes this year. Some of you may recall the TODDLER T-SHIRT DEBACLE OF 2011 - where the t-shirts were so teensy-weensy we had to add them to Sister's American Girl wardrobe. We don't want that to happen again. NOT sure what I (oops, I mean the t-shirt orderer) was thinking here! So, theLAST DAY TO PRE-ORDER T-SHIRTS ON LINE IS WEDNESDAY, 10/3 before midnight. If you want to still preorder, you can do so through Thursday, 10/4 at 8pm, but you will need to contact Becky to get your order in. After that, you are going to have to buy it at the door and pay the extra cash!

See, friends, there are ALL kinds of upsides to preordering - for example, you can wear your shirt to the event, you can save money (Dave Ramsey likes that!) and you can avoid those long, nasty lines. Who wouldn't want to preorder. Everyone's doing it.

Six 4 CF

Who is in? I have been perusing the menu over at the Angus Barn, boy do they have it going on! Not that I think I'm going to win or anything, I just like to be prepared. Really.

Remember, if you bring 6 GUESTS WITH YOU (folks that are breathing, over 18 and have never been to the FJJ before) then you will be entered into a drawing for a $100 gift certificate to the Angus Barn. What's not to love about this? The person who thought of this must be really, really super smart. Yeah, thanks, Wayne.

Flapjack Jam ::: Update 9/21/12

SIX 4 CF

WHO KNEW that just coming out to the Flapjack Jam was going to have so many rewards? THIS year, in addition to the heart-warming feeling you get by doing good, you will also be entered into a LIMITED DRAWING!

That's right, friends! IF you bring SIX guests who have never been TO the the Flapjack Jam before - you will be entered into a drawing for a $100 gift certificate to the famed, world-renowned Angus Barn. Guests have to be over 18 - you can't just pick up random kids from the 'hood...and you will need to stop at the ticket booth and let us get a pulse - just kidding, but you do need to stop by and give us their names so we can add them to our list for next year...see how this works :-)

SO - call those old friends you have been dying to see, get the local barista, put some yard signs up - this year is ALL about some outreach...and some fantastic corn-fed beef that only the AB can provide...

Great, Fantastic, Unbelievable News...

After more than two months of oral antibiotics, IV antibiotics, PICC line and additional treatments, SUPER D is PICC-LINE FREE! 

Yesterday, the nurse came over and pulled it out (yes, friends, Dylan is keeping it...) and he is living it up! We want to thank everyone for their prayers, for coming to see Dylan at Duke and for being such a big part of our fight to find a cure!

For all that Dylan and his family have had to endure these last 60+ days, let's make this Flapjack Jam the BEST FLAPJACK JAM EVER!

SPONSORS, SPONSORS, SPONSORS!

WOO-HOO! Thanks to our latest sponsors - Howard, Green & Moye, LLP and Metal Tech Inc! they have answered the call - going beyond our wildest dreams...thanks for helping to brighten our first week of soliciting sponsorships!

And, there is plenty of room available if you want to get on board - we have various levels to fit just what you are looking for! Check out our sponsorship levels here to the right, click and pay - we are that easy, folks!

The Auction - the SWAG!

The auction is taking shape, friends! We have a PLETHORA of items up for bidding - vacation houses (doesn't that sleeping porch look de-vine?), dinner on the town, sporting event tickets - really, anything you could image, within reason, of course!

The Flapjack Jam is a mere 10 weeks before Christmas - no pressure, we're just saying that perhaps you would want to take advantage of these FANTASTIC deals and get some holiday shopping done at the same time...

Think about it, not having to go to the mall or wait for that darn UPS truck to get there...food for thought, friends, food for thought...

Until next time, friends!

Flapjack Jam ::: Update 9.18.2012

BIG NEWS!

My oh my...that Amy Cook sure has been busy! Big news over here at the HQ...wait for it...

We are in the process of becoming our very own non-profit organization! The Super Dylan Nation.  I feel so empowered to do good in the world, don't you? It's all about flexibility, our official Certified Public Accountant (AKA Amy) says. I LOVE FLEXIBILITY...who doesn't? By becoming our own non-profit, we are able to add more events without adding a lot of overhead time! Yeah, it's all about efficiency...Amy says.

So, what that means for this year, is that instead of having payments go through the Cystic Fibrosis Foundation, they will go directly through us...which is good news for anyone caught in the auction payment line last year! You will enjoy the same tax deductions as you have in the past - we are all about some customer service over here, friends. Look for our new sponsorship information and our new payment options. This is the start of something BIG, I feel it!

CHECK US OUT - WE ARE STARS!

Last year's censorship did not deter her...this year our Head of the Audio Visual Department (AKA Mandy) is at it again! Check out our new video! Share it with friends, post it to your social media accounts - get it OUT THERE! The more folks see Cystic Fibrosis up close, the more they will know if sucks...we are still working on NOT using that word, really we are...

TICKETS & T-SHIRTS GET 'EM NOW!

Our tickets and t-shirts are available for purchase now - simply select your order on the website and pay through paypal! We are so super-excited about all the technology we have at our fingertips - my leg is just tingling!

So, this year the t-shirt is a GILDAN "old gold" - really kind of a brown, perfect for fall! We will have sizes from kids to adults - t-shirts are $10 pre-ordered and $15 at the door (while those supplies last) - add $2 for extended sizes 2X and up.

Until next time, friends!

Flapjack Jam - Get Ready Now!

Hello Flapjack Friends!

It's hard to believe it's time for the THIRD ANNUAL FLAPJACK JAM! Can you believe it? Seems like only yesterday we were flapping jacks, cakewalking and talking to the po-po about noise ordinances! Time sure does fly and it's no different over here at the HQ! Though, this year we have had time to reflect, ponder and come to some conclusions.

A few observations from the past year...kids grow up fast. Life is short. The bus is never on time when you are in a hurry. It's really hard to work when the pool is open. There are SO MANY reasons to prefer Michael Phelps over Ryan Lochte. And...cystic fibrosis sucks. I hate to use that word, I try to tell my kids to find another word, because surely we can. We are educated people, truly we are. So, we go with that - cystic fibrosis is unfortunate. It's tragic. It's miserable. It's sad. It's unlucky. It's bad...but, really, I think sucks is the best word. I hate that it's the best word, but I think it is. I want it to be something else, but it's not. Sucks. That's the word.

And, what's even worse than it sucks is that it totally surprises you too. Lulls you into thinking that it's not so terrible, then takes you completely off guard - like a kick in the gut. I have always known Dylan, and I have always known that he has cystic fibrosis, so I am not sure why when he was hospitalized for two weeks in July, I was so completely taken off guard. Maybe because he has always been so healthy - after all it had been five years since he had to be admitted to Duke. Maybe it's because he's so active - makes me tired to look at him! Maybe it's because Jeff and Nicole treat him the same way they treat Steven. Maybe it's because he chooses not to be defined by his illness. That must be it - I think we will go with that one!

Sometimes, driving home from seeing Nicole and Dylan in the hospital, or watching Jeff with Steven and Allyson, I would think if they can fight that hard, then surely we can too. That if they can have faith to move a mountain, then surely we can too. That if they refuse to let cystic fibrosis steal their lives, then surely we can too.

We CAN do so much. We CAN help so much. We CAN be so much...together. Let's make the 2012 Flapjack Jam the BEST FLAPJACK JAM EVER!

Save the date...it's coming...Saturday, October 13 at the Lakemont Club...details soon...will try NOT to use the word suck.

We are looking forward to seeing you all!

Becky, Mandy and Amy (AKA - the Head Flapjackers!)

SAVE THE DATE!!

The kids are off to school, restaurants are highlighting tailgate specials and homes are displaying their "House Divided," football flags.  It all adds up to one important thing...

It's Time To Get Your JAM On!!

The Flapjack Jam to benefit the Cystic Fibrosis Foundation is back! Mark your calendars for October 13, 2012.

Once again expect fantastic raffle and silent auction prizes, fantastic live music and, of course the best flapjack dinner this side of the Mississippi!

Please keep checking this page as we'll be updating often with band, prize and event information! 

This year was a rough year for Super Dylan, with a two week trip to the hospital and lots of medicine added to his daily routine.  But it was a big year for the fight for a cure too! 

In January, Kalydeco was approved by the FDA to treat an underlying cause of CF! It has already improved the lives of patients (including a second cousin of Mandy's who was taken off of a lung transplant list because his health has improved so vastly!!)

This specific form of Kalydeco does not treat Dylan's version of CF. But a version of the drug that is suited for him is currently at stage 3 of trials.  

THE MONEY YOU'VE DONATED HAD BROUGHT THE RESEARCH THIS FAR!!!

And the money from Flapjack Jam and similar fundraisers all over will go toward making more and brighter tomorrows for CF patients all over the world!! 

There is No Time to Waste!! Let's do our part!! 

Thanks so much for stopping by! Can't wait to see you at the JAM!!

FLAPJACK JAM 2011 - THE WRAP!

ABSOLUTELY A-MAZING!! Thanks to all of you for your generosity - the Second Annual Flapjack Jam raised - wait for it...$10,725!

Who knew that we would not only meet, but exceed our $10,000 goal! We stand in awe of YOU - our friends, family and neighbors! Whether you drove grade stakes into bales of straw, walked a million miles for one of those cakes, flapped jacks, bought an auction item, played blissful music or simply passed along a kind word for the FJJ, our hearts are overwhelmed with the outpouring of love for Dylan and CF'ers around the United States.

A few noteworthy highlights from the Jam...

Dylan got to meet Scotty McCreery! Finally! Dyl, Ellie and Nicole went to Garner Saturday morning to meet Scotty's mom to pick up the concert tickets (yeah, FJJ!) and low and behold Scotty was filming his music video that day, right there at Garner High School! Who knew?
Well, Super D got the big introduction and even, get this, got to see Scotty's new tour bus that was previously owned by Kenny Chesney...not too bad, huh? We asked Dylan if he rolled around in Kenny's bed, but he said no...Maybe next year.

Raleigh's finest paid us a visit...

To be honest, this is not the first time the police have come to see me, and Mandy did get that cease and desist letter, but seriously? At a fundraiser for CF? Note to self for next year: investigate noise permit, even though you think - gee, it's a Saturday in the middle of the afternoon on private property in the middle of a neighborhood that is totally rallying around the event...

The good news? He did not take us away and he posed for photos...the bad news, he was TOTALLY wearing Kevlar so he must be familiar with the recent "situations" in the hood! Special thanks to Uncle Alan for pointing me out to him...

The best thing? Scotty generously donated 100 tickets to the Flapjack Jam! The Smith Family was able to share those tickets with all of YOU! We had a great time at Scotty's concert last Saturday and Nicole, Dylan and Steven got to go back stage - FOR REAL! It's like Scotty is one of the family now, they are seeing him so much!

You're a good man, Scotty McCreery - I have now downloaded your first album! And, please tell Brad we said hello!

So, that was the Flapjack Jam of 2011! We had a fantastic time - the kitchen ran smoothly - though the management sure is picky about quality control - the crowds were well controlled - and folks just looked like they were giddy. We think giddy is good, don't you?

We do have a few gold t-shirts leftover...adult extra larges. We will sell those for half-price at $5 per shirt. We also have some 2T (very, very small) for the younger set...those are free because...we love kids and had no idea that a 2T could be that small. If you would like a t-shirt, please email Becky.
In closing, thanks for making the FJJ2 such a huge success! You may think that the small things you do go unnoticed, but the truth is, they don't. We heard every kind word you said, felt every prayer you prayed and noticed that you cared enough to spend some of your time, talent and treasure to make Dylan's life, and other CF'ers, a little easier.

We are so blessed to know each of you and are looking forward to planning FJJ3 for 2012...

Did You HEAR?

TWO DAYS AND COUNTING! We are so, so ready here at the Super Dylan HQ!

Where to start...my, oh, my!

Perhaps you read about our good news...you should REALLY, TRULY, MAKE SURE you are at the Flapjack Jam on Saturday...you just never know what might happen...

Our 2011 Silent Auction Sneak Peek Catalog is ready for viewing! A small sampling of the cornucopia of merchandise we have to offer, really. But, we thought you would want to get by the bank and get those big bills out. We are taking it ALL again this year - credit cards, checks, cash...no bartering though (sshh - we have a real CER - TI - FIED PUBLIC ACCOUNTANT on staff at the HQ now)! BRING IT!

Remember, all the money raised will go directly to the Cystic Fibrosis Foundation so it’s really a win/win for everyone! You get something cool, the foundation gets some cash – it’s all good!

If you have already purchased your tickets, then we thank you for your support of the Cystic Fibrosis Foundation. If you have not yet purchased tickets, we would love to have you! It is sure to be a fun time! If you need tickets, simply email Amy (AMY, not ART - I swear!)

T-shirt quantities are limited, so if you want one, you better get one quick. Email Becky to see if we can accommodate your needs!


Thanks to all those who have donated items – we love you and are singing your praises from the rooftops, because honestly, YOU ROCK!

A few event details to pass on:

Bring a chair or a blanket! If you don’t, you may be on the grass, which isn't so bad, but a chair would be much better!

We will also be raffling the whole time – what’s a fundraiser with no raffle? All kinds of good stuff – raffle tickets will be $1...

If you live in the Lakemont ‘hood, we are asking you to walk, skateboard, bike, kayak or use any other method of transportation other than a car! We have sold many, many tickets and we want to ensure we have ample parking for our “other” friends. Besides, exercise is good and it helps the earth...

If you are driving, directions to the Lakemont Club are as follows:

From Downtown: Take Six Forks Road North. Take a right onto Rowan Street. Take a left onto Lakemont. Take a right onto Pinecroft. Take a right onto Latimer. Take a right onto Harvard. The club is located at the end of Harvard at 409 Harvard Street.

From North Raleigh: Take Six Forks Road South. Take a left onto Rowan Street. Take a left onto Lakemont. Take a right onto Pinecroft. Take a right onto Latimer. Take a right onto Harvard. The club is located at the end of Harvard at 409 Harvard Street.

We will be parking at the club parking lot, directly behind the pool in the grass, at the easement entrance at Pinecroft and at the side entrance on Little Falls.

Our staff meteorologist has predicted an absolutely perfect autumn day for the Flapjack Jam, so we fully expect to be rocking the house at 3:00pm.

On behalf of the Super Dylan Nation and the Smith Family, we wanted to thank each of you for supporting the Flapjack Jam! Whether you pass along an email, "LIKE" the Super Dylan Nation on facebook or simply say a kind word - it all makes a huge difference to us! Every day, every SINGLE day, we are one day closer to a cure. With your help, and support, we are making a difference, not just in Dylan's life, but in the lives of the 29,999 other CF'ers in the United States.

Lest you think we CANNOT make a difference, we have convinced the head of NBC Universal's copyright infringement division to approve the official video, made friends with a future CMA winner and gotten some serious SWAG for the auction! Yeah, not bad for some "housewives from midtown!"
THIS IS IT - the Flapjack Jam is ON!